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Creators/Authors contains: "Evans, Hayley"

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  1. Past research has demonstrated that accounts of trusted others can provide additional context into real world behavior relevant to clinical decision-making and patient engagement. Our research investigates the Social Sensing System, a concept which leverages trusted other feedback for veterans in therapy for PTSD. In our two phase study, we work with 10 clinicians to develop text-message queries and realistic scenarios to present to patients and trusted others. We then present the results in the form of a storyboard to 10 veterans with PTSD and 10 trusted others and gather feedback via semi-structured interview and survey. We find that while trusted other feedback may provide a unique and useful perspective, key design features and considerations of underlying relationships must be considered. We present our findings and utilize the mechanisms and conditions framework to assess the power dynamics of systems such as social sensing in the mental health realm. 
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  2. Post-traumatic stress disorder (PTSD) disproportionately affects United States veterans, yet they may be reluctant to seek or engage in care. We interview 21 participants, including veterans with PTSD, clinicians who treat veterans and friends and family that support veterans through mental health ordeals. We investigate the military identity these veterans share. We explore how this may add to their reluctance in care-seeking behaviors. We also explore the roles of human and non-human intermediaries in ecologies of care and the potential for enhancing patient empowerment in current clinical treatment contexts. We discuss how military culture can be utilized in clinical care, how multiple perspectives can be leveraged to create a more holistic view of the patient, and finally, how veterans can be empowered during treatment. We conclude with recommendations for the design of sociotechnical systems that prioritize the above in support of the mental well-being of veterans with PTSD. 
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